This preliminary study aimed to document the information needs of families with a child with a disability, from the point of view of both the parents and professionals involved with them. Three discussion groups were carried out: two with parents of children with Down’s syndrome or cerebral palsy, and another with the health professionals involved. The results show that the parents seek information concerning the initial health problem, available health care, and other resources that might be of help. Sources of information for parents include health care professionals, other parents in a similar situation, the media, and the Internet. The obtained information influences the parents’ adjustment to their child’s health situation, and also impacts the relationships they have with the health care team. Some recommendations regarding intervention are proposed.